Pujols Family Foundation : News and Events : Mom's Focus Group
Mom's Focus Group
How is the best way to find the un-met needs in the Down syndrome
Ask the moms, of course!
On August 2, 2006, the Pujols
Family Foundation hosted a mini focus group with moms of children with Down
syndrome (infants to teens) to discuss the needs in the St. Louis Down syndrome
community. "Don't bother asking the dads," joked Tracy Bright, "If you want to
know what's going on in our kids lives, you must ask a mom!"
The focus group was facilitated by Jeanette Bax-Kurtz of MPP&W and the
questions were designed to draw off of the positives in the children as we
discussed their needs and solutions. "We wanted a good cross-section of parents
who could speak from their hearts," said Jeanette. "We are looking for the holes
in services for the most people affected, not just one group or part of the
"At the end of the day, we went through several tissues as well as flip
chart pages," noted PFF Director Todd Perry. "But we found what we wanted. There
are so many people doing a great job in the Down syndrome community, and we do
not want to duplicate any services given. We are simply seeking the greatest
needs for the greatest number of people and we will try and address those
issues, one at a time."
Special thanks to the Crowne Park Plaza, Jeanette Bax-Kurtz, Lauren Perry,
Dana Ashley and all the mothers for helping make this project a success!